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ebay coach factory online largely by fundraisers held by Efforts 4 Ellie.Mike Centrella, Ellie's father, said plain cornstarch and Glycosade have made the difference between sustaining Ellie's life and improving it."(Weinstein) treats this like medicine," Mike said. "We live our lives based on these hours."Weinstein, Mike called him the world's leading GSD specialist, is creeping closer to a cure for the more common form of GSD, 1a. The cure for 1b could simply be a variation.Most people living with GSD 1b prior to 1972 did not live to adulthood, said Christina Centrella, Ellie's mother. Cornstarch treatment has led to longer and more normal lives. Adult women living with GSD 1b are having healthy babies."The outlook now is much better," Christina said. "But there's nobody alive in their 50s and 60s just because there was no cornstarch treatment then."GSD 1b is considered an "orphan" disease, it does not receive federal funding for research. Only 100 people in the United States 300 worldwide have been diagnosed with it.Only one other person in the world a 38 year old Canadian woman is known to have the exact same strain as Ellie.The lack of federal funding for GSD 1b forces families of victims to fund research themselves. The Centrellas created Efforts 4 Ellie, a nonprofit that raises money to support GSD 1b work. On Saturday, Efforts 4 Ellie will hold a bingo fundraiser at the Glen Burnie Elks Lodge."If you don't have research, you'll never get it into being cured," Christina said. "There's no medicine that we can give her so it's more of the diet and the routine."Long gone is 'round the clock feeding tube